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Uma and me 1/3

How do you give a child a tablet they don't want but desperately need? Crumbled into chocolate spread? Maybe pushed into a gummy bear? Uma refuses both. Her parents have to come up with something. Not just in this scenario, but over and over in their lives, which are just as crazy as those of most families – and yet different.

The couple learned there was a problem before Uma was born, when her growth in the womb did not go according to plan. Her mother Tabea Hosche and her husband Laslo decided to have the baby and Tabea, a journalist, has been recording family life with her camera since Uma was born almost seven years ago.

Uma has a rare genetic disorder and suffers from epilepsy. She is mentally handicapped, wears hearing aids and her speech development is severely limited. Tabea shows honestly and intimately how she and Laslo cope with life with Uma and her healthy little sister Ebba.

She says: "I want to give an honest and unvarnished insight into our lives. Life with Uma is wonderful. But at times also very painful. Some days I wish she hadn't been born disabled and imagine all the things she would tell me if she could."

This programme by German channel ARD is part of The European Collection, a joint initiative of European public media (ARD, ARTE, France Télévisions, SSR SRG and ZDF), coordinated by ARTE.

Duration :

45 min

Available :

From 23/10/2021 to 20/01/2022

Genre :

Documentaries and Reportage

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